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Kidney Topics
Finding a Specialist

  • If you have been diagnosed with kidney disease or have concerns about your kidney health, finding the right kidney disease specialist, also known as a nephrologist, is essential. Nephrologists are doctors who specialize in diagnosing and treating kidney-related conditions, including chronic kidney disease (CKD), kidney stones, and genetic kidney disorders.

      1. Ask Your Primary Care Doctor for a Referral

        • Your primary care physician is often the first point of contact when you have kidney-related issues. They can recommend a trusted nephrologist based on your specific needs and medical history.

      2. Use Online Directories

        • GlomCon Network: GlomCon provides access to a global network of nephrologists and kidney disease specialists, offering resources and connections for patients and healthcare providers.

        • National Kidney Foundation (NKF): The NKF website provides a directory of nephrologists and kidney care centers.

        • American Society of Nephrology (ASN): ASN offers a searchable database of board-certified nephrologists.

      3. Check with Your Health Insurance Provider

        • Contact your insurance company or check their website for a list of in-network nephrologists. This can help reduce your out-of-pocket costs.

        • Confirm that the specialist accepts your insurance plan before scheduling an appointment.

      4. Visit Academic Medical Centers

        • Teaching hospitals and academic medical centers often have nephrology departments with specialists experienced in treating complex or rare kidney conditions. They may also be involved in the latest research and clinical trials.

      5. Look for Specialists in Hereditary Kidney Diseases

        • If you have a family history of kidney disease or a genetic condition like polycystic kidney disease (PKD), look for a nephrologist who has experience in genetic kidney disorders.

        • Some nephrologists specialize in hereditary and rare kidney diseases, and they can offer more personalized care.

      6. Read Patient Reviews and Testimonials

        • Online platforms such as Healthgrades, Zocdoc, and Google Reviews can provide insights into patient experiences. Look for comments about the doctor’s communication style, bedside manner, and thoroughness.

      7. Seek Recommendations from Support Groups

        • Joining a kidney disease support group online or in person can be a valuable resource. Members often share personal experiences and can recommend specialists they trust.

      1. Are they board-certified in nephrology?

        • Board certification ensures that the doctor has received specialized training and passed rigorous exams about kidney diseases. 

      2. Do they have experience with your specific condition?

        • If you have a rare or complex kidney disease, ask if the nephrologist has treated similar cases.

      3. What hospital are they affiliated with?

        • Knowing the hospital where the nephrologist practices can be important, especially if you may need hospitalization or specialized procedures.

      4. How do they coordinate care with other specialists?

        • Kidney disease often requires a team approach involving primary care doctors, endocrinologists, dietitians, and other specialists.

      5. What is their approach to patient education?

        • A good nephrologist should take the time to explain your condition, treatment options, and lifestyle changes.

    • During your initial appointment with a nephrologist, you can expect:

      1. Comprehensive Medical History Review

        • The doctor will ask about your medical history, family history of kidney disease, and any symptoms you’re experiencing.

      2. Physical Examination

        • A physical exam may include checking your blood pressure, heart rate, and signs of fluid retention.

      3. Review of Previous Test Results

        • Bring copies of any recent lab tests, imaging studies, or reports related to your kidney health.

      4. Ordering Additional Tests

        • The nephrologist may order blood tests, urine tests, or imaging studies to assess your kidney function and determine the severity of your condition.

      5. Discussion of Treatment Plan

        • Based on the findings, the doctor will discuss treatment options, including medications, dietary changes, and lifestyle modifications.

    • You should consider seeing a nephrologist if:

      • You have been diagnosed with chronic kidney disease (CKD).

      • Your blood tests show elevated creatinine or decreased estimated glomerular filtration rate (eGFR).

      • You have persistent protein or blood in your urine.

      • You have high blood pressure that is difficult to control.

      • You have a family history of hereditary kidney disease.

      • You are experiencing symptoms of kidney problems, such as swelling (edema), fatigue, or changes in urination.

    • Finding the right kidney disease specialist is crucial for managing kidney health and preventing complications. By following these steps and asking the right questions, you can find a qualified nephrologist who will develop a personalized treatment plan with you.

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      During this process, don’t hesitate to seek support from your healthcare team, support groups, or trusted friends and family members. Early intervention and proper management can make a significant difference in preserving your kidney function and overall well-being.

  • Access GlomCon's trusted physician network to find specialists who can guide you through your kidney care journey. Explore experts near you or consult virtually for personalized support.

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    The GlomCon Network bridges the gap between patients, caregivers, and the kidney care professionals they need—right in their own communities. 

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GOT QUESTIONS?
Share your concerns confidentially and get expert insights from a nephrologist during our PACE meeting. 
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